Real Life Stories

Daniel's Story Neuroblastoma

At 5 months old, we noticed something wrong with Daniel's right eye.

 

He was diagnosed with Horner’s Syndrome and had an MRI that showed no tumors and the blood and urine tests came back negative. However, it did show what they thought was a swollen lymph node on the right side of his neck. We waited 6 months until Daniel was 1 year old and repeated the MRI. This time it showed that the lymph node had gotten significantly bigger. We were referred to an oncologist, and had a biopsy done.

 

On April 6, 2005, when Daniel was almost 14 months old, we got the news that it was cancer. He was diagnosed with Stage III, intermediate risk, non N-Myc amplified Neuroblastoma with favorable histology. The tumor was found to be on both sides of his neck. So far, and up to that day, Daniel had been a healthy, happy, adorable, loving little boy. He had no other symptoms. Daniel had a central line port surgically placed in his chest through which he received 4 rounds of chemotherapy (A3961).

 

As of July 28, 2005 he is NED – No Evidence of Disease!

 

We were fortunate to have been given a sign to catch this early. Most cases go undetected until they reach a later stage.