Real Life Stories

Rett Syndrome Links & Resources

Ontario Rett Syndrome Association
Tel: (519) 474-6877
The Ontario Rett Syndrome Association (O.R.S.A.) exists to ensure that girls and women with RS are enabled to achieve their full potential and enjoy the highest quality of life within their community. The charitable organization provides information, emotional support and other assistance to the families of girls and women in Ontario with Rett Syndrome.

SickKids Hospital
Hospital for Sick Children website provides families with reliable, current information about all areas influencing child health and family quality of life in a format that is easy to understand.